Research Findings
We believe that every patient should have the information necessary to make informed decisions about their or their loved ones’ cancer journey.
Research Findings
Study by Stanford University
Are patients getting the advice they need to get tested?
Access the article here
This study recently published by Stanford Medicine in June 2023 shows thatamong more than a million patients diagnosed with cancer, only 6.8% received genetic testing within two years of their diagnosis! The article also outline how this testing can assist a healthcare provider discuss options with patients for medications or potential surgical decision changes.
Even patients with a cancer that aligned with guidelines for genetic testing - male breast cancer (50%), ovarian cancer (38.6%) and female breast cancer (26%) were not tested by their healthcare provider as often as recommended.
It is essential that patients are empowered to ask the right questions and understand if genetic testing could help them with their current diagnosis, as well as help generations to come!
Practical decisions about how to integrate genetic testing for cancer into the primary care setting.
There is a pressing need to better integrate genetic testing for hereditary cancer risk into primary care settings.
Access the article here
Numerous clinical studies have been published stating that barriers to genetic testing should be removed within clinical settings. It is referenced that primary care providers should make increased efforts to incorporate this type of testing and conversation into their clinical practice.
Even if a healthcare provider is not comfortable with completing the testing, an appropriate referral to another healthcare provider or genetic counselor is recommended. If your healthcare provider is unable to provide genetic testing, seek care elsewhere as this is an essential part of your cancer journey.
Genetic Testing Fact Sheet
This genetic testing fact sheet was developed by the National Institutes of Health (NIH) within their National Cancer Institute divison. Numerous questions and potential issues within genetic testing are addressed by this unbiased fact sheet.
The importance of Self-advocacy
The clinical need for genetic testing may not be fully recognized by healthcare professionals. In this study, 66% of women diagnosed with breast cancer reported wanting genetic testing. Only 29% reported having a test. Being an advocate for yourself or your loved one is essential when diagnosed with cancer!
Genetic testing in prostate cancer managemnt
Prostate cancer associated with a genetic alteration normally is more aggressive than those men that do not have a genetic predisposition. It is essential that men are tested, as it can change their surveillance and screening to either catch cancer earlier or have better access to monitoring through your insurance.
Genetic testing for colorectal carcinoma susceptibility
Colon cancer may be one of the most frequent forms of hereditary cancer. Many patients are unaware that colon cancer has a hereditary correlation for increased cancer risk. The prevelance for Lynch Syndrome is just as high for patients as the risks for carrying a Hereditary Breast and Ovarian (BRCA) mutation.